This being ME/CFS awareness week I want to make a small contribution to the many blogs being posted.
So many people over the last couple of years have greeted me with the words “You look really well”. If only I felt as well as I apparently look! People, I assume, think that I will appreciate being told that I look well. Umm, no, not really. That probably makes me sound very ungrateful, I apologise if that is the case. Saying “You look really well” actually makes me feel under pressure to perform as if I am feeling as well as I look. I would far more appreciate them saying “I am so pleased to see you up & about”. You see, “You look really well” tends to give the impression that I am feeling better, on the mend so to speak. It is true that on days when I am out & about I am feeling better than on those days when I struggle to get out of my pj’s. ME for me however, is still a daily battle. I have to conserve my energy in order to get up, out & about & meet people. Often, by the time I get to meet up with people I have already used up most of my battery power. My leg is not in plaster but getting from A to B is still as difficult to achieve as if it were. I am guessing that were I in a plaster cast I would generate more understanding? What people don’t see is that before I meet up with people or go to the shops or theatre I have to lead a very quiet life for a few days beforehand in order to build up as much power in my battery as possible. Afterwards my battery is so drained & I am so exhausted that sleep is beyond me, being overtired sends my mind in to overdrive. It takes me several days to get back to what is a relatively good place for my ME.
Please, people, when you meet up with me & others who feel the same as me & are battling an INVISIBLE illness think before you say ‘You look really well’. Instead, show your appreciation for the fact that we have managed to get up, out & about by just saying how lovely it is to see us.